Volume 4, Issue 4 (Spring 2019)                   SJNMP 2019, 4(4): 66-75 | Back to browse issues page

XML Persian Abstract Print

Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Samsamipour M, Madmoli Y, Ahmadimazhin S, Roohafza J, Babolibahmaei A, Rahmati P et al . Health-related Quality of Life of Young Adult with beta-Thalassemia Major. SJNMP 2019; 4 (4) :66-75
URL: http://sjnmp.muk.ac.ir/article-1-201-en.html
1- Student Research Committee, Dezful University of Medical Sciences.
2- Student Research Committee, Dezful University of Medical Sciences. , ymadmoli@gmail.com
3- Dezful University of Medical Sciences
Abstract:   (2402 Views)
Background & Aim: Quality of life in people with thalassemia is impaired; thalassemia young adult cannot success in their life in society because of problems. This study investigated health-related quality of life of young adult with beta thalassemia major.
Materials & Methods: This descriptive cross-sectional study was conducted on 55 young patients with thalassemia major referred to thalassemia center in hospital of Dezful. For assessment quality of life SF-36 questionnaire was used. Data analysis with SPSS-18 software using T-test, ANOVA, Pearson and Spearman correlation coefficient at significant level p<0.05 was used.
Results: A total of 55 young patients with thalassemia (33 males and 22 females) were enrolled. Mean of quality of life in these patients was 16.70±72.35. The average physical and mental health scores in these subjects were 76.27±16.03 and 69/99±19.44, respectively. The lowest and highest quality of life scores related to general health (61.68) and pain (85.86), respectively. Also in this study was found between general health and emotional well-being, there was a significant relationship with level of education (p>0.016). Positive correlation between income and pain was significant (p= 0.02) (r= 0.3).
Conclusion: The results of this study demonstrated the quality of life of young adult with thalassemia in some aspects is not acceptable. Their physical and mental health should also be considered and so health systems should strive to improve the quality of life of these young people.
Full-Text [PDF 546 kb]   (855 Downloads)    
Type of Study: Research | Subject: General
Received: 2018/12/31 | Revised: 2019/06/30 | Accepted: 2019/01/28 | Published: 2019/10/24 | ePublished: 2019/10/24

1. Mikelli A, Tsiantis J. Depressive syndromes and quality of life in adolescents with thalassemia. J Adolescence. 2004; 27(2): 213-16. [DOI:10.1016/j.adolescence.2003.11.011]
2. Mohammadi S, Tajvidi M, Ghazizadeh S. The relationship between spiritual well-being with quality of life and mental health of young adults with beta-thalassemia major. Sci J Iran Blood Transfus Organ. 2014; 11(2): 147-54.
3. Madmoli Y, Beiranvand R, Korkini N, Mashalchi H, Beigom Bigdeli shamloo M, Karimi H et al. Comparison of health-related quality of life in beta thalassemia major and healthy people in Dezful in 2015. Iranian Journal of Nursing Research. 2016; 11 (1): 9-16.
4. Naderi M, Hormazi MR, Ashrafi M, Emamdiadi A. Evaluation of Mental Health and Related Factors among Patients with Beta-thalassemia Major in South East of Iran Iranian. J Psychiatry. 2012; 7(1): 47-51.
5. Teimoori Z, Sedghi Sabet M, Hasavari F, Rezapour M. The study of bodily, mental, social, and economical problems of major thalassemia infected patient that referred to Somesara Imam Khomeini Hospital. Gilan nursing journal. 2007; 18(59): 31-37.
6. Sadati S, Tamadoloni A, baghianimoghadam MH. Quality of Life in Patients Suffering from Beta-Thalassemia Major in Amirkola Iran. J Community Health Res. 2015; 4(3): 234-238.
7. Salama H, Hussein H, Al Faisal W, Belhool K, Hasan Mahdy N, El Sawaf E.
8. Health-Related Quality of Life in Transfusion-Dependent Thalassemia Major Patients and Associated Factors in Dubai, UAE, 2011. Middle East Journal of Psychiatry and Alzheimer's. 2014; 5(3): 3-10. [DOI:10.5742/MEJPA.2014.92525]
9. Giorgio l, Caocci G, Efficace F, Dessi C, Vocca A, Piras E, et al. Long-term health-related quality of life evaluated more than 20 years after hematopoietic stem cell transplantation for thalassemia. Blood J. 2016; 122(13): 2262-70. [DOI:10.1182/blood-2013-05-502658]
10. Thavorncharoensap M, Torcharus K, Nuchprayoon I, Riewpaiboon A, Indaratna K, Ubol BO. Factors affecting health-related quality of life in Thai children with thalassemia. BMC Hematology. 2010 Dec; 10(1): 1-10. [DOI:10.1186/1471-2326-10-1]
11. Mazzone L, Battagilo L, Andreozzi F, Antoneittaromeo M, Mazzone D. Emotional impact in β-thalassaemia major children following cognitive-behavioural family therapy and quality of life of caregiving mothers. Clin Pract Epidemiol Ment Health. 2009; 5(5): 1-6. [DOI:10.1186/1745-0179-5-5]
12. Nasiri M, Hosseini H, Shahmohammadi S. Mental health status in patients with Thalassemia major in Iran. J Pediatr Rev. 2014; 2(1): 55-61.
13. Ibrahim Aljeesh Y. Quality of Life Among Thalassemia Children Patients in the Gaza Strip. American Journal of Nursing Science. 2016; 5(3): 106-13. [DOI:10.11648/j.ajns.20160503.15]
14. Zarea K, Baraz S, Pedram M, Pakbaz Z. Comparison of quality of life in adolescences with Thalassemia and their families. IJNR. 2014; 8(4): 42-50.
15. Montazeri A, Goshtasbi A,Vahdani Nia MS. Translation, reliability and validity of the SF-36 in Persian. Payesh. 2006; 5(1): 49-56.
16. Khani H, Majdi MR,‎ Azad Marzabadi E, Montazeri A, Ghorbani A, Ramezani M. Quality of life in Iranian Beta-thalassemia major patients of ‎southern coastwise of the Caspian Sea. Journal of Behavioral Sciences. 2009; 2(4):13-14.
17. Majde Teimoori Z, Sedghi Sabet M, Sasavari F, Rezapuor M. The study of bodily, mental, social, and economical problems of major‎ thalassemia infected patient that referred to Somesara Imam Khomeini Hospital. J Holist Nurs Midwifery. 2008 Apr 1; 18(1): 31-7.
18. Vafaei M, Azad M, Shiargar P, Kazemi Haki B. Quality of life in patients with thalassemia major referred to Ardabil Buali Hospital in 2012-13. Medical Sciences. 2015; 25(4): 305-10.
19. Goli M, Salarvand S, Dehvan F, Ghafouri H, Dalvand S, Ghanei Gheshlagh R, et al. Health-related quality of life in Iranian patients with thalassemia major: a systematic review and meta-analysis. Int J Pediatr. 2018; 6(11): 8483-94.
20. Khaledi S, Moridi G, Valiee S. Comparison the quality of life of healthy and Thalassemic children. IJNR. 2013; 8(29): 87-94.
21. Imani E, Asadi Nooghabi F, Hosseini Teshnizi S, Yosefi P, Salari F. Comparison quality of life in patients with thalassemia major based on participating in group activities, Bandar Abbas. Sci J Iran Blood Transfus Organ. 2013; 10 (2):198-206
22. Hadi N, Karami D, Montazeri A. Health-related quality of life in major thalassemic patients. Payesh. 2009; 8(4): 387-393.

Add your comments about this article : Your username or Email:

Send email to the article author

Rights and permissions
Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

© 2023 CC BY-NC 4.0 | Scientific Journal of Nursing, Midwifery and Paramedical Faculty

Designed & Developed by : Yektaweb