Volume 6, Issue 4 (Spring 2021)                   SJNMP 2021, 6(4): 32-45 | Back to browse issues page

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karami M, Chorami M, Ghazanfari A, Sharifi T, Masoudi R. A comparative study of the effect of group training on Family-Centered Empowerment Program and Self-Compassion Program on Perceived Stress and Stigma of Family Care Providers of Epilepsy Patients. SJNMP. 2021; 6 (4) :32-45
URL: http://sjnmp.muk.ac.ir/article-1-372-en.html
1- Department of Psychology، Shahrekord Branch، Islamic Azad University، Shahrekord، Iran
2- Department of Psychology, Shahrekord Branch,Islamic Azad University, Shahrekord, Iran , choramimaryam@gmail.com
3- Department of Psychology, Shahrekord Branch,Islamic Azad University, Shahrekord, Iran
4- invited associate Professor of Nursing Department , Shahrekord Branch, Islamic Azad University, Shahrekord, Iran
Abstract:   (175 Views)
Background & Aim: Epilepsy is the most common neurological disease in a chronic and debilitating nature. In addition to the infected person, the disease also affects their family members. Therefore, the present study was conducted to compare the effect of group training family-centered empowerment program and self-compassion program on the perceived stress and stigma of epilepsy patients’ care providers.
Materials & Methods: By simple random sampling, 60 primary caregivers in people with epilepsy were selected and divided into two groups of experimental and control. The measuring instruments were Cohen’s perceived stress questionnaire with a reliability of 0.87 and Fernandez’s stigma questionnaire with Cronbach's alpha of 0.82. To analyze the data, repeated measures analysis of variance test have been conducted using SPSS version 20.
Results: Family-centered empowerment and self-compassion training in comparison with the control group, were able to make significant changes in reducing perceived stress (p<0.001) and social stigma (p<0.001). Also, there was no significant difference between the mean score of self-compassion effectiveness and family empowerment group in perceived stress, but there was a significant difference in social stigma variable (P<0.05) and self-compassion treatment was more effective. Towards family-centered empowerment training had a social stigma variable.
 Conclusion: In general, the study indicated that family-centered empowerment program and self-compassion one can be taken as effective interferences to mitigate perceived stress and stigma of epilepsy patients’ care providers.
Full-Text [PDF 684 kb]   (105 Downloads)    
Type of Study: Research | Subject: Special
Received: 2020/11/16 | Revised: 2021/07/16 | Accepted: 2021/01/1 | Published: 2021/05/31 | ePublished: 2021/05/31

References
1. Sutter R, Rüegg S. Refractory status epilepticus: Epidemiology, clinical aspects and management of a persistent epileptic storm. Epileptologie. 2012; 29: 186-93.
2. Jokeit H, Ives-Deliperi V. Impaired social cognition in epilepsy. Frontiers in Neurology. 2019; 10: 940. [DOI:10.3389/fneur.2019.00940]
3. Magalov S, F Hasanov N, X Azizova N, N Novruzov A, B Mustafayev Z, A Kazimov S, et al. The prevalence of epilepsy in the Nakhichevan Autonomous Republic of Azerbaijan. CNS & Neurological Disorders-Drug Targets (Formerly Current Drug Targets-CNS & Neurological Disorders). 2012; 11(2): 102-9. [DOI:10.2174/187152712800269768]
4. Esmaieli R, Esmaeli M, Jamalodiny S, Kaveh J. Survey of Social and Familial Problems Between Patients and their Families Refer to Iranian Epilepsy Association. Iranian Journal of Psychiatric Nursing. 2015; 3: 9-11.
5. Karakis I, Cole AJ, Montouris GD, Luciano M.S, Meador KJ. Piperidou C. Caregiver Burden in Epilepsy: Determinants and Impact. Epilepsy Res Treat. (2014). [DOI:10.1155/2014/808421]
6. Heydari M, Sh E, Masoudi R, Kheiri S, Jivad N. The Effect of Family-Centered Care on the Family Caregivers' Burden of Patients With Epilepsy. Journal of Clinical Nursing and Midwifery. 2018;7(2):146-57.
7. Lua PL, Khairuzzaman NKW, Aziz ZA, Foo JLK. The needs and problems in epilepsy caregiving: A qualitative exploration. Asean J Psychiatry. 2015;16(1):116-26.
8. Tayeb HO. Epilepsy stigma in Saudi Arabia: The roles of mind-body dualism, supernatural beliefs, and religiosity. Epilepsy & Behavior. 2019;95:175-80. [DOI:10.1016/j.yebeh.2019.04.022]
9. V Olisah FN, A Yusuf. Nigeria Northern, State Katsina in epilepsy with tientspa of caregivers among distress Emotional. Psychiatry J Afr. 2013;1(16):4-41.
10. Ohaeri JU, Awadalla AW, Farah AA. Quality of life in people with epilepsy and their family caregivers. Saudi medical journal. 2009;30:1328-35.
11. Thompson PJ, Upton D. The impact of chronic epilepsy on the familySeizure. 2012;1(1):43-8. [DOI:10.1016/1059-1311(92)90054-5]
12. Saburi G. Stressors of caregivers of school-age children with epilepsy and use of community resources. Journal of Neuroscience Nursing. 2011;43(3):E1-E12. [DOI:10.1097/JNN.0b013e31821456f6]
13. Elafros MA, Sakubita-Simasiku C, Atadzhanov M, Haworth A, Chomba E, Birbeck GL. Stigma and psychiatric morbidity among mothers of children with epilepsy in Zambia. International health. 2013;5(4):288-94. [DOI:10.1093/inthealth/iht028]
14. Amjad RN, Nasrabadi AN, Navab E. Family stigma associated with epilepsy: a qualitative study. Journal of caring sciences. 2017;6(1):59. [DOI:10.15171/jcs.2017.007]
15. Baca CB, Vickrey BG, Hays RD, Vassar SD, Berg AT. Differences in child versus parent reports of the child's health‐related quality of life in children with epilepsy and healthy siblings. Value in Health. 2010;13(6):778-86. [DOI:10.1111/j.1524-4733.2010.00732.x]
16. Benson A, O'Toole S, Lambert V, Gallagher P, Shahwan A, Austin JK. The stigma experiences and perceptions of families living with epilepsy: Implications for epilepsy-related communication within and external to the family unit. Patient education and counseling. 2016;99(9):1473-81. [DOI:10.1016/j.pec.2016.06.009]
17. Rani A, Thomas PT. Stress and perceived stigma among parents of children with epilepsy. Neurological Sciences. 2019;40(7):1363-70. [DOI:10.1007/s10072-019-03822-6]
18. Saada F, Wang ZS, Bautista RED. In focus: The everyday lives of families of adult individuals with epilepsy. Epilepsy & Behavior. 2015;50:10-3. [DOI:10.1016/j.yebeh.2015.05.041]
19. Won CW, Fitts SS, Favaro S, Olsen P, Phelan EA. Community-based "powerful tools" intervention enhances health of caregivers. Archives of gerontology and geriatrics. 2008;46(1):89-100. [DOI:10.1016/j.archger.2007.02.009]
20. Neff KD. The role of self-compassion in development: A healthier way to relate to oneself. Human development. 2009;52(4):211-4. [DOI:10.1159/000215071]
21. Soysa CK, Wilcomb CJ. Mindfulness, self-compassion, self-efficacy, and gender as predictors of depression, anxiety, stress, and well-being. Mindfulness. 2015;6(2):217-26. [DOI:10.1007/s12671-013-0247-1]
22. Van Dam NT, Sheppard SC, Forsyth JP, Earleywine M. Self-compassion is a better predictor than mindfulness of symptom severity and quality of life in mixed anxiety and depression. Journal of anxiety disorders. 2011;25(1):123-30. [DOI:10.1016/j.janxdis.2010.08.011]
23. Baker D. Psychological perspectives on stigma and self-compassion in adults with epilepsy: Lancaster University; 2017.
24. Irons C, Lad S. Using compassion focused therapy to work with shame and self-criticism in complex trauma. Australian Clinical Psychologist. 2017;3(1):1743.
25. Baker DA, Caswell HL, Eccles FJ. Self-compassion and depression, anxiety, and resilience in adults with epilepsy. Epilepsy & Behavior. 2019;90:154-61. [DOI:10.1016/j.yebeh.2018.11.025]
26. Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. Journal of health and social behavior. 1983:385-96. [DOI:10.2307/2136404]
27. Fernandes PT, Salgado PC, Noronha AL, Sander JW, Li LM. Stigma scale of epilepsy: validation process. Arquivos de Neuro-psiquiatria. 2007;65:35-42. [DOI:10.1590/S0004-282X2007001000006]
28. Gilbert P. The origins and nature of compassion focused therapy. British Journal of Clinical Psychology. 2014;53(1):6-41. [DOI:10.1111/bjc.12043]
29. Zemestani M, Sohrabi A, Taherpour M. Effectiveness of compassion-focused therapy on depression, anxiety, stress, and weight self-efficacy in patients with eating disorder. 2019.
30. Neff KD, Faso DJ. Self-compassion and well-being in parents of children with autism. Mindfulness. 2015;6(4):938-47. [DOI:10.1007/s12671-014-0359-2]
31. Etemadifar S, Heidari M, Jivad N, Masoudi R. Effects of family-centered empowerment intervention on stress, anxiety, and depression among family caregivers of patients with epilepsy. Epilepsy & Behavior. 2018;88:106-12. [DOI:10.1016/j.yebeh.2018.08.030]
32. Parvareshan S, Shamsalinia A, Jahanshahi M, Hajiahmadi M. Impact of Family-Based Empowering Model on the Per-ceived Threat and Self-Efficacy of Families of Diabetic Elderly at Risk of Falling. Journal of Clinical Nursing and Midwifery. 2018;7(2):96-107.
33. Mahon MA, Mee L, Brett D, Dowling M. Nurses' perceived stress and compassion following a mindfulness meditation and self compassion training. Journal of research in nursing. 2017; 22(8): 572-83. [DOI:10.1177/1744987117721596]
34. Houtz JC, Selby EC. Problem solving style, creative thinking, and problem solving confidence. Educational Research Quarterly. 2009;33(1):18.
35. Leary MR, Tate EB, Adams CE, Batts Allen A, Hancock J. Self-compassion and reactions to unpleasant self-relevant events: the implications of treating oneself kindly. Journal of personality and social psychology. 2007; 92(5): 887. [DOI:10.1037/0022-3514.92.5.887]
36. Schoenefeld SJ, Webb JB. Self-compassion and intuitive eating in college women: Examining the contributions of distress tolerance and body image acceptance and action. Eating Behaviors. 2013; 14(4): 493-6. [DOI:10.1016/j.eatbeh.2013.09.001]
37. Maghan M. Problem solving style and coping strategies: Effects of perceived stress. Creative Education. 2017; 8(14): 2332-51. [DOI:10.4236/ce.2017.814160]
38. Camfield C, Camfield P. Twenty years after childhood‐onset symptomatic generalized epilepsy the social outcome is usually dependency or death: a population‐based study. Developmental Medicine & Child Neurology. 2008; 50(11): 859-63. [DOI:10.1111/j.1469-8749.2008.03165.x]

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